Wednesday, April 1, 2009

Do you hear what I hear?

On Friday Birch, Chloe, Alex, and I headed to Seattle Children's Hospital for a little surgical procedure for Alex. Although Alex is a champ at surgeries now he certainly does not look forward to them and understandably still gets a good dose of butterflies.
Waiting to be called back for the surgical prep work.

You can tell that Chloe loved having the day with her daddy. She also learned two new tricks while we were in Seattle -- clapping and waving her hand "bye bye."

As I've mentioned in the past Alex's man made ear canal that was created for him in November 2007 is very narrow. His surgeon in Seattle felt like he had some scaring that was causing the restricted ear canal thus making his hearing almost non existent in that ear. The purpose of this surgery was to inject the scarring with Botox and as a side effect the scarring should shrink thus opening his ear canal and improving his hearing.

Alex was quite nervous as the anesthesiologist came to talk with him about the procedure but was reassured when she told him that I could go back with him while they were putting him to sleep. I have never had that experience before and now I was a little nervous myself too. I was glad that I got to be with him and help him feel a little more at ease as he drifted off to sleep.
Gotta do something fun while waiting to hear back from the doctor, right?

The procedure lasted about twenty minutes. Dr. Sie was able to dilate his ear canal using expander's and then inject the scarring, clean out his ear canal (dead skin cells and wax always block his ear canal because of its narrowness), and insert a sponge in his canal so we could continue to add some medicine to it as it all heals.
The post-op of the surgery was a little rough for Alex. In the past Alex hasn't done well with the normal kind of sleeping medicine so we have used something alternative to help him with the nausea he has experienced with the normal drug. Anyway, we decided that since this surgery was going to be so short we would just try the routine drug so that his recovery time would be shortened. Turns out that wasn't such a good idea. Alex spent the seven hours following his surgery throwing up in the hospital and car ride home. Not only was it so sad that he felt awful but it was also disheartening to him because we had planned to go out for some yummy food (he had been fasting a long time) and go do something fun in Seattle. In the end we just drove home and Alex was relieved to have his own couch to recover on.

The rest of the kids had a great day at school and playing with their friends. I'm not sure what we would do without being surrounded by such wonderful people. It's such a blessing to always have good friends to count on when we are in need. The adventure continues...

5 comments:

Mama Nirvana said...

Is this the last thing? Will he need to have this done again? Poor guy -- he sure is a trooper.

Amy

Ditto Family said...

Good question about whether he will need more surgeries. Alex certainly hopes this is the last but we have learned to never say one way or the other. So who knows...

emily a. said...

Proud of you Alex. Did you get a raincheck for that fun meal?

Matt's Blog said...

What a brave kid! We've always been impressed Alex...

Rachel said...

Wow, that's great. I'm so glad that you were able to be there with him. You are so silly in your hospital gear. Your family is darling, your newest little girl is a dream!